American Syringomyelia and Chiari Alliance Project Fundraiser

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by Cindy Crysler

Two years ago my youngest daughter was diagnosed w/Chiari I Malformation.  Around the same time, my friend’s daughter was diagnosed w/the same thing.  That’s 2 little girls w/this same rare brain disorder in our little town of just over 1,100 people.  I can’t change that, but I am doing what I can to raise awareness and funds for research grants for ASAP (American Syringomyelia and Chiari Alliance Project).  In light of that, we are having a fund raiser/awareness event at Dixie Motor Speedway in Birch Run, MI on July 2 at the Super Sprints race.  A very kind blogger here in our state did a post on us recently. http://michiganwomensforum.blogspot.com/2010/05/childs-rare-disorde…

If anyone local wants to attend the races that night, we do get a portion of the tickets that we sell.
Also, if anyone is able to make a donation for our silent auction I would greatly appreciate it.  As ASAP is a 501c3 organization, any donations will receive a receipt for tax purposes.
Thanks again for any help you are able to give.  If you could spread the word to anyone you know who might be interested in attending or donating, please do so.
I’ll leave you with a link to a tv special on Chiari I.  It was on Mystery Diagnosis, which is a Discovery Channel show.  It’s about 20 minutes long.  But at the end, you will understand why I feel so blessed to have the neurologist we have, who caught A’s issues before I knew anything about it.  Very informative video. http://www.chiaritvspecial.com/chiarivideo.html

Cindy ChryslerCindy assists her husband with his business venture Streamside Farm toy barns.  The home schooling mom of  4 resides in Millington, MI.  Cindy is a former Detroit Mom, now living “Up North”.

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About Courtney Velasquez

Courtney is the ultimate multitasking mom! She runs three blogs Miami Mommies, Detroit Mommies and Discovering Arkansas, is the VP of Community for Collective Bias and has 3 girls under 11 years old. Courtney is the founder of Detroit Mommies. You can follow her on Twitter @courtneyRVL.

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